Background: Hidradenitis suppurativa is an inflammatory skin disease that presents a recurrence of painful and suppurating lesions in the apocrine gland-bearing regions, with a strong impact on the patients’ life quality. Despite its peculiar presentation, early forms are often underestimated by patients and this would inevitably result in late diagnosis and delayed therapy. Objectives: Improved communication around the disease could facilitate self-diagnosis and a quicker response from healthcare practitioners, especially in this moment when we dispose of effective treatment against this disease. Methods: A HS awareness campaign was conducted for 2 years with the help of a media agency and a patients’ association. Results: Results confirm that a better communication has a strong impact on the disease awareness. Conclusions: This paper demonstrates that the more this disease awareness is carried on, the more quick, effective and efficient the patient's management could be.
Improving the disease awareness: how a communication campaign brings hidradenitis suppurativa to the light / Ribero, S.; Dapavo, P.; Casalegno, C.; Alaibac, M.; Argenziano, G.; Arpaia, N. G.; Bagnoni, G.; Berti, E.; Bianchi, L.; Bianchini, D.; Calzavara Pinton, P.; Cannavo, S. P.; Congedo, M.; Corrao, S.; Costanzo, A.; Cusano, F.; Dattola, S.; Dattoli, S.; Deledda, S.; Donini, M.; Fabbrocini, G.; Teresa Fierro, M.; Foti, C.; Galluccio, A. G.; Gatti, A.; Rene Girardelli, C.; Girolomoni, G.; Lemme, G.; Malagoli, P.; Malara, G.; Mercuri, S. R.; Micali, G.; Montesu, M. A.; Offidani, A.; Papini, M.; Parodi, A.; Patrizi, A.; Pellacani, G.; Peris, K.; Piccirillo, A.; Pigatto, P.; Pimpinelli, N.; Potenza, C.; Provenzano, E.; Romanelli, M.; Rongioletti, F.; Savoia, P.; Simonacci, M.; Sirna, R.; Stinco, G.; Valenti, G.; Zalaudek, I.. - In: JOURNAL OF THE EUROPEAN ACADEMY OF DERMATOLOGY AND VENEREOLOGY. - ISSN 0926-9959. - 33:6(2019), pp. 7-9. [10.1111/jdv.15828]
Improving the disease awareness: how a communication campaign brings hidradenitis suppurativa to the light
Mercuri S. R.;Rongioletti F.;
2019-01-01
Abstract
Background: Hidradenitis suppurativa is an inflammatory skin disease that presents a recurrence of painful and suppurating lesions in the apocrine gland-bearing regions, with a strong impact on the patients’ life quality. Despite its peculiar presentation, early forms are often underestimated by patients and this would inevitably result in late diagnosis and delayed therapy. Objectives: Improved communication around the disease could facilitate self-diagnosis and a quicker response from healthcare practitioners, especially in this moment when we dispose of effective treatment against this disease. Methods: A HS awareness campaign was conducted for 2 years with the help of a media agency and a patients’ association. Results: Results confirm that a better communication has a strong impact on the disease awareness. Conclusions: This paper demonstrates that the more this disease awareness is carried on, the more quick, effective and efficient the patient's management could be.I documenti in IRIS sono protetti da copyright e tutti i diritti sono riservati, salvo diversa indicazione.
